Resources

Down Syndrome Foundation of Orange County (DSFOC)
Down Syndrome Foundation, Orange County provides educational services to help improve educational outcomes for students with Down syndrome.

Down Syndrome Education International (DSE)
Down Syndrome Education International is a UK-based charity that works throughout the UK and around the world to improve education for young people with Down syndrome through scientific research and advisory services.

Massachusetts Down Syndrome Congress (MDSC)
The Massachusetts Down Syndrome Congress works daily to ensure that individuals with Down syndrome in Massachusetts are valued, included, and given the opportunities to pursue fulfilling lives.

National Down Syndrome Congress (NDSC)
National Down Syndrome Congress is the national provider of information, advocacy and support concerning all aspects of life for individuals with Down syndrome.

National Down Syndrome Congress (NDSS)
National Down Syndrome Society is the national advocate for the value, acceptance and inclusion of people with Down syndrome through four focused areas: community support programs, the National Policy Center, public awareness initiatives and the National Buddy Walk Program.

Foundation for Children with Special Needs (FCSN)
The Federation for Children with Special Needs provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities.

Global Down Syndrome Foundation (GDSF)
Global Down Syndrome Foundation is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education and advocacy.

LuMind Foundation
LuMind Foundation stimulates biomedical research to accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome.

Jérôme Lejeune Foundation
The Jérôme Lejeune Foundation is the world’s largest private funder of research into genetic intelligence disabilities with over $4 million in funding provided annually to research projects worldwide.

Massachusetts General Hospital Down Syndrome Program
The Mass General Hospital Down Syndrome Program integrates state-of-the-art resources with compassionate, comprehensive care through a multi-disciplinary approach. National experts from Massachusetts General Hospital, MassGeneral Hospital for Children, and Massachusetts Eye and Ear Infirmary are ready to help your family member with any medical issue that may occur.

Boston Children’s Hospital Down Syndrome Program
The Down Syndrome Program in the Developmental Medicine Center at Boston Children’s Hospital offers multidisciplinary clinical evaluations for people with Down syndrome from birth until the age of 22. With each appointment, we are also able to make referrals and connections with any of the other specialty clinics at Boston Children’s. The Down Syndrome Program is more than a clinic, however. We strive to provide resources, advocacy, and supports to all families, depending on their individual needs.

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