Julie Messina’s son, Evan, has Down syndrome. In sharing her experiences, Julie gets at the heart of a modern ethical dilemma. Just because we can screen for genetic abnormalities – and in so doing minimize and potentially remove the presence of disability – to what extent should we?
As the weather turns cooler, winter-wear staple Ugg is for the first time offering styles aimed at accommodating kids and adults with disabilities.
The brand best known for their boots is introducing an adaptive footwear line dubbed Ugg Universal.
The new collection features “functional iterations” of classic Ugg styles that have been modified to include oversized double zippers, rear pull tabs and toggle-adjusted stretch laces.
In the United States, around 6,000 babies are born with Down syndrome every year. These treasured members of our society are sources of inspiration to the many families and communities graced by their lives. Those living with Down syndrome face unique challenges, reminding us every day that it is incumbent upon us as a Nation, to continue empowering them to reach their full potential. Throughout this Down Syndrome Awareness Month, the First Lady and I celebrate these remarkable people, members of our families, communities, and Nation, and my Administration reasserts its commitment to standing against those who seek to discriminate, devalue, and demean the sanctity of their lives.
The future for Americans with Down syndrome is more exciting and more hopeful than ever before, as we continue cutting edge research and develop therapies. In 2019, the National Institutes of Health invested $35 million toward more advanced Down syndrome research. In September 2020, an additional $60 million was dedicated to bolster funding for Downs syndrome research. These funds will lead to scientific breakthroughs and broaden our understanding of Down syndrome so that we can more effectively improve the health of these American citizens and expand their opportunities to thrive in our society.
As our society progresses toward a more inclusive future, there are still those who pass judgment on which lives are worth living. As President, I denounce radical proposals to terminate pregnancies of unborn children with Down syndrome. Our Nation will continue to emphatically affirm the self-evident ideal that all children—born and unborn—are created in the image of God, are worthy of life, and deserve to be loved.
Our country must never run astray from the certitude that the lives of those with Down syndrome are precious and full of potential. During Down Syndrome Awareness Month, we are reminded that we must never waver in our efforts to support these individuals so that they can enrich the soul of our Nation with their joy and love.
We’ve all been impacted by Covid, but our community in particular has been hard hit.
A letter published recently in the American Journal of Psychiatry on behalf of the directors of the nation’s 13 intellectual and developmental disabilities research centers — which are funded by the National Institutes of Health — is sounding the alarm about the devastating impact the pandemic has had on an already vulnerable population.